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Recommended Books on Sickle Cell Anemia
Crystals in My Bones: One Sickle Cell Anemia Journey Bern Brewer is a transplant from Philadelphia, PA via Washington DC where she met her husband, who brought her to Fresno, CA and there she resides. The tuition was so low and CSUF that she got the opportunity to get a degree in Education, and a minor in Music, her first love. While teaching she got her Masters in Early Childhood Education. Her thesis peaked her interest in writing. She has a few stories and articles published now. Now she has time to write. She has one adult daughter and one grandchild. Though she never got to be an Operatic Lyric Soprano like Marion Anderson, she still uses her beautiful voice in two choirs and in the Fresno community. Her daughter, Tarea, got her into the challenge of writing this book, by telling her husband that her mother writes and that she might help him with his concern. He had a severe case of Sickle Cell Anemia.
Scientist and Puzzle Solver, Constance Tom Noguchi (Verheyden-Hilliard, Mary Ellen. American Women in Science Biography.) Connie was a baby when she and her family came to America from China. As a little girl with an inquiring mind and the energy to always try "one more thing," she studied ballet, learned to twirl a baton, and grew up to marry, have a family, and earn a Ph.D. in theoretical nuclear physics. Her breakthrough research on sickle cell anemia solved part of the puzzle on that disease that had long baffled other scientists.
Menace In My Blood: My Affliction With Sickle-Cell Anemia Author relates growing up in a fairly well-to-do polygamus family in West Africa and highlights the difficulties of life under the spell of an incurable blood disorder.
Sickle Cell Disease: Pathophysiology, Diagnosis, and Management Sickle cell disease is a complex disease with a genetic mutation producing a wide variety of manifestations. It is of great public health importance nationally and internationally. While the conclusions of this study support the generally accepted views on the disease, the book provides the most recent information and state-of-the-art knowledge on the subject. The book is unique in that it presents the genetic, molecular, cellular, metabolic, rheologic, clinical, diagnostic, therapeutic, and psychosocial dimensions of sickle cell disease. Its synthesis of micro to macro, molecular to cellular, individual to social relationships provides a comprehensive study of sickle cell disease. The book offers a synthesis of basic science describing genetic, molecular, metabolic, and rheologic aspects of sickle cell disease. Clinical aspects, including diagnosis and treatment, and psychosocial aspects, covering the interaction of the patient with sickle cell disease with society, are also treated. Physicians, scientists, allied health workers, sociologists, and social workers, epidemiologists and anthropologists as well as administrators of sickle cell centers will find this volume useful. The ultimate goal of the book is to improve the understanding of sickle cell disease and to contribute to a better quality of life for those who have the disease or who are at risk of getting it.
Disorders of Hemoglobin: Genetics, Pathophysiology and Clinical Management Disorders of Hemoglobin is the first comprehensive reference on the genetic and acquired disorders of hemoglobin in over a decade. It stands as the definitive work on the genetics, pathophysiology, and clinical management of this wide range of disorders. Drs. Steinberg, Forget, Higgs, and Nagel have gathered the absolute world authorities on the science and clinical management of thalassemias, sickle cell disease, and other inherited and acquired hemoglobinopathies to create this authoritative textbook for researchers and clinicians alike. This text is divided into eight distinct sections, and includes coverage of the molecular and genetic basis of hemoglobinopathies and thalassemias, their epidemiology and genetic selection, and the diagnosis and special treatments of ^D*b and ^D*a thalassemias, sickle cell disease, Hb E, unstable hemoglobins, Hb M disorders, and acquired and secondary disorders of hemoglobin. Clinical features of all disorders are anchored to the scientific and pathophysiological events that precede them; providing clinicians with a clear scientific background of the disorders they treat, and scientists with an essential link between their research and its clinical manifestation. Disorders of Hemoglobin is the only single-source reference of its kind for hematologists, internists, pediatricians, clinical investigators, and geneticists worldwide.
Renaissance of Sickle Cell Disease Research in the Genome Era The Human Genome Project has spawned a Renaissance of research faced with the daunting expectation of personalized medicine for individuals with sickle cell disease in the Genome Era. This book offers a comprehensive and timeless account of emerging concepts in clinical and basic science research, and community concerns of health disparity to educate professionals, students and the general public about meeting this challenging expectation. Contributions from physicians, research scientists, scientific administrators and community workers make Renaissance of Sickle Cell Disease Research in the Genome Era unique among the catalogue of books on this genetic disorder.
Practical Management of Haemoglobinopathies Presents a comprehensive picture of care, including diagnostic, therapeutic, and psychosocial aspects. The contributors cover basic science and epidemiological aspects of the public health challenge, but maintain a focus on the day to day issues encountered in dealing with affected people.
Containing clear, practical advice, this text is an essential, practical resource to bridge the gap between expensive reference texts and smaller manuals.
Practical Management of Haemoglobinopathies is an ideal for;
- Trainees and residents in haematology
- Hematologists in practice
- Healthcare professionals treating those with sickle cell disease and thalassaemia
Why Buy This Book?
- Deals with practical problems encountered in the comprehensive care of affected individuals
- Each chapter written by an expert in the field
- Comprehensive coverage of basic science, laboratory diagnosis, psychosocial support and community care
Sickle Cell Anemia - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with sickle cell anemia is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so.
In the Blood: Sickle Cell Anemia and the Politics of Race (Critical Histories)
Although it strikes individuals from a variety of backgrounds, sickle cell anemia has always been known as a "black" disease in America. In the Blood argues that ever since the discovery in 1910 and subsequent scientific analysis of the disease, sickle cell anemia has been manipulated to serve social ends-as a tool for securing white identity and a way to establish a hierarchy based on European heritage. Tapper shows how sickle cell anemia was used to promote the superiority of racial purity, to characterize the black body as contaminated, and even to support the notion that modern humans evolved from multiple origins.
Hope and Destiny: A Patient's and Parent's Guide to Sickle Cell Disease and Sickle Cell Trait An up-to-date, informative, and personal discussion of sickle-cell anemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.
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